The human genome contains our most personal and sensitive information—the complete compendium of our inherited traits. Even the smallest samples of human tissue and accompanying health histories provide vast troves of data to the biomedical community, which in turn has a legal and ethical obligation to safeguard its usage.
Category: Bioethics
Q&A with Pilar Ossorio: Is whole genome sequencing an effective diagnostic tool?
As the cost of whole genome sequencing (WGS) approaches $1,000, the possibility of using it to help diagnose patients becomes economically feasible. But is it the right tool for doctors?
New ethics consulting service to help UW scientists navigate gray areas
A new service will provide the University of Wisconsin–Madison research community with another checkpoint on ethical challenges that arise across the research spectrum, from study design to the implications of results.
Scholars call for new ethical guidelines to direct research on social networking
The unique data collection capabilities of social networking and online gaming websites require new ethical guidance from federal regulators concerning online research involving adolescent subjects, an ethics scholar from the Morgridge Institute for Research and a computer and learning sciences expert from Tufts University argue in the journal .